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scared and alone…..

Post a new topicby livingwith on Thu Apr 02, 2009 11:02 am

I am 26 years-old and diagnosed with mild dysplasia.
I am scared, and I could never tell my family members. Since, it is caused by HPV, and sex before marriage, I know for a fact that my parents would not react kindly. They would shame me and (knowing my mother) she would call up every relative and friend and tell them about my HPV And, I am not sure I would want to tell my the man I have been dating for the past 5 months either.
So, I must bear this one alone……
I never slept around...Read the full article
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livingwith
 
Posts: 8060 | Joined: Thu Aug 09, 2007 2:36 pm

Re: scared and alone…..

Post a new topicby morgan123 on Thu Apr 09, 2009 11:20 am

You are not alone, there are thousands of women who are suffering from the same crisis. Research is NOT positive what causes Dysplasia, certainly your risk is greater if you contracted HPV. Please have the HVP test done. If your boy friend has not pressured you to have sex it sounds like he's a good man and will understand. From what I have read you can still have children. You should discuss this with your OBGYN. First and most important thing is that you do your research and trust your doctor. If at all possible, get a second opinion about treatments and procedures. I read that you should build up your immune system. Keep us posted and God Bless.
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morgan123
 
Posts: 4 | Joined: Thu Mar 19, 2009 10:36 am

Re: scared and alone…..

Post a new topicby nab1107 on Fri Apr 10, 2009 12:05 am

Hi,

I am 26 years old with severe dysplasia. I was told if they would not have got it that I would have developed cancer within a year or less. Currently I have a cone-bioposy scheduled for may. I am hoping for the best and that all the pre-cancerous cells are removed. So I know how you feel.
First, I want to say that you are completely not alone at all. More women than you even know go through this. One out of every two women I have spoke with have been diagnosed and gone through surguries. It is shocking to know how many women actually deal with this. Second, 70% of cervical dysplasia is caused by HPV, 30% is for a reason unknown (this comment per my doctor). So you may not have HPV at all. They can not tell if HPV causes it until they have scraped it out of you and tested it in a lab. I have had this condition for 6 years. It started out mild and got progressively worse. For six years I thought I had HPV, but when I had the LEEP surgery and everything was tested, it was concluded that it WAS NOT caused by HPV. What a relief I felt. So do not beat yourself up.

Also 15 months ago I gave birth to a beautiful, healthy baby boy. In that time my Stage I-II cervical dyspalsia began to improve. My pregnancy was smooth and I was happier than I have ever been. My delivery was a breeze. SO you can have children with with Stage I-II cervical dysplasia. Unfortunatley, after my baby was born things got way worse for me. I was told that after this Cone Biopsy I could still concieve children easily, but I will be a high-risk pregnancy. My doctor told me at 14 weeks they will put a stitch in my cervix to prevent premature birth.

If you keep an eye on this and get regular check ups, then you will be fine. They will catch it before it gets too bad. Unfortualtley for me, It got bad fast, but it was rare, because even my doctor was surprised.

And as for your mother saying that you do not have to see a gyno unless you are having sex. Completly fause, and no offense to her and I sincerely mean that. But you should start seeing a Gyno at age 18 whether you are having sex or not. Thank god I did, because as soon as I hit college I started having abnormal paps and at that time I was not sexually active.

So I hope this has helped. If you would like to talk to me some more, please let me know and i will give you my email address. It is nice to have someone who can understand what you are going through.

nab1107
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nab1107
 
Posts: 1 | Joined: Thu Apr 09, 2009 11:49 pm

Re: scared and alone

Post a new topicby ergirlie333 on Fri Apr 10, 2009 10:35 pm

I have just been diagnosed with mild dysplasia with HPV as well, and it's a horrible feeling. You have to realize you are not alone, and more people than you think are walking around with this disease. I am sorry about your lack of insurance, but you can also look into the homeopathic way to healing as well. I have a friend who wiped out her disease completely with diet and de-stressing her life, stress has a huge role in this disease and it can make it worse. Hopefully you have some friends that you can talk to this about, or try and get therapy. Depending where you live, there is counsling that is based on how much you make, and I only pay ten dollars when I go. Remember your not alone, nor should you feel shame in any way, also there is no test for guys, nor is there any way of detecting it in their bodies, so you would have no way of knowing that you were sleeping with someone who carries this disease, so give you self a break. The most important advice is to educate your self as much as possible, this will empower you and make you feel more confident about whats going on in your body.
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ergirlie333
 
Posts: 1 | Joined: Fri Apr 10, 2009 10:26 pm

Re: scared and alone…..

Post a new topicby morgan123 on Sat Apr 11, 2009 7:57 pm

Just curious. We all seem to be in the same boat, who lives in NYC...?
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morgan123
 
Posts: 4 | Joined: Thu Mar 19, 2009 10:36 am

Re: scared and alone

Post a new topicby goingthroughit on Tue Apr 14, 2009 12:28 pm

You are NOT alone. I know you must be scared, and I'm worried too about my case. It's very similar to yours, I'm a bit older and I have a mild form (which could be moderate depending on the results from the colpol I did today).

They do not know for sure what causes it, and it is possible to have it without contracting HPV. I tested negative for HPV (2 times) and I still have these abnormal results on my PAP. Everyone is different, so don't assume that you got it through sex- that may not be the case!

It's nerve racking to say the least, but it's been identified and catching it at this stage is totally treatable. My doc said it has no effect on having children. You should definitely ask your doctor these questions and really get the info you need.

Good luck!
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goingthroughit
 
Posts: 1 | Joined: Tue Apr 14, 2009 12:21 pm

Re: scared and alone…..

Post a new topicby scorpio813 on Sat Apr 18, 2009 7:12 pm

i was recently diagnosed with moderate dysplasia and just went through my colposcopy yesterday. now i just have to wait up to 2 weeks for the results. at my level, i am told that only 5% of these cases progress to cancer WITHOUT treatment. at the mild level, it's only 1%, again, without treatment that will progress to cancer. and with no treatment, it takes 10-12 years to go through the different stages of dysplasia to cervical cancer. my sister has been at the mild level, and it cleared up on it's own.

have you looked into state aid for medical assistance? or even get a little more out of student loans to help with the cost?

if you're not happy with your doctor, get a new one. if you happen to live in or around tampa, i have the best doctor. if so reply and i will give you his info.
your doctor should take the time to sit down and explain things to you. answer all of your questions. write these down as you think of them because you will likely forgot some of them.

once you are happy with your doctor, take your boyfriend or even your mom. they are probably going to have some questions of their own.

you will be fine. you need to surround yourself with the people who love you and will not judge you. stay away from the negative people. you don't need the stress.

last, but never least, seek the guidance of your higher power. the power of prayer is a wondrous thing.
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Posts: 1 | Joined: Sat Apr 18, 2009 6:12 pm

Re: scared and alone…..

Post a new topicby healinginprocess on Wed Apr 22, 2009 4:48 pm

I really needed to read the last part of that for some encouragement in dealing with this disease another thing is prayer works wonders when things seem like they aren't going your way. If he brings you to it He will bring you through it. I too am coping with cervical dysplasia not sure yet what stage still waiting for my results but I'm glad I am not alone.
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healinginprocess
 
Posts: 1 | Joined: Wed Apr 22, 2009 4:41 pm

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