Chronic Pain

[Jessica1988]

My daughter has been type 1 diabetic for 12 years. 2 years ago she began feeling pain on her feet which gradually rose up her calves then thighs. She describes it as a severe burning pain, very sensative to touch and causes her many sleepless nights. 5 months ago she went for a nerve conduction test and result was she had damaged nerves caused possibly by poorly controlled diabetes during her pubity years. Both of us tried so hard to control it but her sugars were impossible. The past year her sugars have been from, very good to excellent even amazing her Enconologist. They put her on to lyrica which did help her feet so she could walk without feeling like she was walking on glass, but suddenly the pain rose to her stomache, shooting through to her back. It seems as if the pain has been rising up her body and my fear is what happens if it reaches her chest then throat? They put her through so many tests finding nothing. She is only 20 yrs old and anorexic looking, so fragile and weak. Laterly she has been so depressed crying she cant live like this anymore. I myself am amazed at her courage and strength to survive each day and night in pain with barely any relief, shes studing at university, who are just great with her compensating her due to her condition and i dont know how much longer she is able to continue. I am beside myself on what to do, I feel that i will soon have to give up my job to watch and look after her fulltime. Her doctors have no idea what to do either. 1 even actually told her there was nothing they can do anymore that she will have to possibly accept and try to stand living this way in hope that it may go away just as it came????????
Any information or ideas what can be done would be greatly appreciated. I would travel the world in search of help for her.

[ralph pelkey]

mabey firbomyaliga sounds like it i have it for 13 years might have her doc put her on ULTRAM it takes a while to get in you system but helps a great deal and trazadon for sleep i no how it is not to sleep IT SUCKS Read the firbo post it mike tell you what u need to no GOD BLESS R pelkey

[lornalea]

Sounds as if your daughter is suffering from peripherial neuropathy. It is very painful and the discription your daughter gives sounds like what I have been going through myself. She really needs to see a Neurologist who deals just with neuropathy. Lyrica is a very safe drug and it helps me too. My doctor has increased it to 200mg 4 times a day. Night time is the worst, but if her doctor can give her something to help her get some sleep she will feel better too.
Good luck.

[meglaser]

has anyone mentioned treatment for either nueraothy or RSD? look into it - see avout pain mgt she may be able to be treated nerve blocks which helped me although i was ice cold in the foot, but that doesn't matter as tge docs will work their magic if they can, or she may have to go onto prescription pain meds. look into she is young & hopefully nerve blocks and maybe lyrica will woork (Now i sound like a doc and i apologize) good luck!!