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Do I really have to live like this the rest of my life???

Post a new topicby livingwith on Wed Aug 13, 2008 11:50 am

Hi I am a 25 years old and It has been almost a year now that I was diagnosed with IC For about two years I had pain during intercourse. I didn’t really think much of it because it wasn’t that bad. I started working for an OB-GYN clinic last August.
I wasn’t used to working normal 8-5 hours I had always worked 3-11. I was drinking coffee like it was going out of style. I started getting terrible pelvic pain and low back pain I also felt like I had a UTI because of the pe...Read the full article
livingwith
 
Posts: 5939 | Joined: Thu Aug 09, 2007 2:36 pm

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Re: Do I really have to live like this the rest of my life???

Post a new topicby strawberryfield92 on Mon Aug 18, 2008 5:07 pm

Hi, I am so sorry you are having to go through this at such a young age. I am 56 today! I was diagnosed with IC 3 weeks ago. I have been visiting a website that has helped me cope. Maybe you are already familar with it www.ic-network.com There are forums there and you can talk with others going through the same things and get lots of education. My heart goes out to you.
strawberryfield92
 
Posts: 1 | Joined: Mon Aug 18, 2008 4:57 pm

Re: Do I really have to live like this the rest of my life???

Post a new topicby dmbass on Fri Aug 22, 2008 4:44 pm

I can relate to a lot of your experiences with IC. The Elmiron did not work for me; I have tried numerous trips to the doctor's office to have the DMSO treatments, which only worked shortterm.

Have you tried checking your diet? I know that certain things in my diet seem to trigger an episode. The doctor also told me to limit my stress; I haven't yet figured out how to do that. When an extremely stressful life event unfolds, I find that it a prime time for the IC to flare up.
dmbass
 
Posts: 1 | Joined: Fri Aug 22, 2008 3:56 pm

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Re: Do I really have to live like this the rest of my life???

Post a new topicby ashbaby22 on Thu Sep 18, 2008 12:01 pm

Hi. My name is Ashley I'm only 20 years old and I too have IC. I have had it since I have been in the 5th grade I have just lived with it unitl now. I have seen my regular OBGYN for years and she could tell me nothing. I FINALLY was referred to a doctor who find what was wrong. Not only do I have IC but my urethra needed to be re-constructed. Elmerion didn't work at all for me, it actually made me 100X's worse. I now had a surgery on my uretha, and I have had two injections in my bladder, I need one final injection and he says I will be like brand new. I hope I don't have to live like this either. What I found that helps is cutting all acidic foods, soda, and caffiene OUT. Try going to a bladder specialist... I'm feeling better everyday :]
ashbaby22
 
Posts: 1 | Joined: Thu Sep 18, 2008 11:56 am

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