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Post a new topicby Guest on Sun Jun 03, 2001 12:12 pm

Can please give us info regarding Clorpactin. I had a treatment of it along a hydrodistension about 9 weeks ago pain is still excruciating. How long does bladder take to re-heal elf pain to go back to pre-surgery level? I am beginning to feel as if my severe pain is never going to improve. I have a very severe case of IC have had it over 25 years at time I am in worst shape I have ever been it. I would not recommend Clorpactin to any IC sufferer.
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Re:

Post a new topicby Guest on Sun Jun 03, 2001 12:12 pm

I have never used Clorpactin as it was never shown scientifically to be very useful (in my opinion), but any hydrodistention can occasionally produce a post op painful syndrome for reasons we do not understand.
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re: Re:

Post a new topicby Guest on Sun Jun 03, 2001 12:12 pm

In reference to healing from a Clorpactin treatment, what is your opinion of having lidocaine/sodium bicarb instillations to soothe the bladder and hopefully recover to where I was prior to the surgery with a hydrodistension. Thank you.
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re: re: Re:

Post a new topicby Guest on Sun Jun 03, 2001 12:12 pm

Clorpactin is the worst instillation they can put in your bladder, in my opinion. And most instillations that they do, (DMSO, Heparin, the "cocktail", Clorpactin, Silver Nitrate etc) havent been proven. The "theory" there is that they "burn and shock" the bladder lining in hopes of laying down a new bladder lining. Its not been medically proven, however it does help some people with pain. I for one, and not one of the lucky ones, as none of the instills have worked. I've had it done and it felt like I was going to die. I would have the doctor instill lidocaine in your bladder because it "numbs" it and takes away that awful burn from the Clorpactin. People vary to different degrees after having instills done..I myself do not heal after any instill or hydros for at least 4-6 weeks or longer. It varies person to person though. My uro will not use Clorpactin on any of his patients because it is the most abrasive instillation out there. I'd ask for the lidocaine...it still hurts, but it numbs you up and nothing is as bad as Clorpactin. Good luck and best wishes!
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Re: re: Re:

Post a new topicby Guest on Sun Jun 03, 2001 12:12 pm

We have used various local anesthetics in combination with other agents with success in situations like yours.
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